{"id":3404,"date":"2023-03-24T14:06:09","date_gmt":"2023-03-24T14:06:09","guid":{"rendered":"http:\/\/wordpress.mytomorrows.com\/?p=3404"},"modified":"2024-02-27T13:25:28","modified_gmt":"2024-02-27T13:25:28","slug":"mighties-at-the-mda-conference","status":"publish","type":"post","link":"https:\/\/main-portal.develop-mytomorrows.com\/ar\/blog\/healthcare-professionals\/mighties-at-the-mda-conference\/","title":{"rendered":"mighties at the MDA Conference"},"content":{"rendered":"
\n
\n

This week, the myTomorrows team and I attended the\u00a0MDA clinical and scientific conference<\/a>\u00a0in Dallas, Texas.<\/p>\n

The\u00a0Muscular Dystrophy Association<\/a>\u00a0(MDA) started in 1950 and works tirelessly to transform the lives of people living with muscular dystrophy, amyotrophic lateral sclerosis (ALS) and related neuromuscular diseases. Alongside their research and advocacy work, they host an annual conference designed to bring together the neuromuscular disease (NMD) community, inviting renowned researchers, industry leaders, clinicians, patients, caregivers, academicians, and advocates. It\u2019s the largest of its kind and offers the unique opportunity for those within the muscular dystrophy field to build connections, networks and collectively push forward development of better care and treatment.<\/p>\n

For myTomorrows, we were excited to contribute, connect with our network and demonstrate how our go-to platform for pre-approval access, linking patients with unmet medical needs, including those with Muscular Dystrophy, with treatments in development worldwide.<\/p>\n

We kicked off our trip by paying a visit to our esteemed colleague, Dr. Diana Castro. Dr. Castro is a Pediatric Neurologist and has just opened\u00a0her own clinic<\/a>\u00a0in Denton, outside of Dallas, where she will support patients with neuromuscular diseases. Dr. Castro makes use of the myTomorrows platform that supports patients with discovering and accessing clinical trials. By doing this, she supports her patients to navigate options and ensures that her clinical trials are visible to patients outside of her clinic. To find out more about her inspiring story,\u00a0read our recent blog<\/a>\u00a0profiling Dr. Castro. Adrianne Rivard, myTomorrows Medical Science Liaison, and I were humbled and honored to have been invited to attend the clinic\u2019s grand opening. It was a hugely special occasion, celebrating Dr. Castro\u2019s distinctive, personal, and innovative approach to community-based patient care.<\/p>\n<\/div>\n<\/div>\n

\n
\n

Next up, at the MDA conference, our booth was ready to welcome existing connections as well as new ones. Over the course of the next three days, we met with over a hundred healthcare professionals, physicians, patients, advocates, and leaders in the biopharma industry. It was truly inspiring to meet so many individuals, all motivated by the same patient-centric mission to improve quality of life and give patients more options and better access. At our stand, we had conversations with physicians which reinforced the need for patient-focused support when potential clinical trials are being investigated. We gave out helpful materials to treating physicians and clinical researchers designed to explain the myTomorrows\u2019 mission, purpose and highlight our relevance within the industry. We showcased our easy-to-use platform through demos, showing how our personalized and streamlined approach empowers both physicians and patients to manage treatment with confidence. We\u2019d like to thank everyone who visited us, your time, expertise and passion was really appreciated.<\/p>\n

A key priority for us at the conference was to further our own understanding of current developments and innovations. We joined a series of lectures and workshops, demonstrating cutting edge research advancements and clinical achievements in neuromuscular disease. For me, to be a part of that wider discussion, side by side with so many distinguished guests and leaders, was awe inspiring. I was fascinated by the session led by Barry Byrne MD PhD on Gene Therapy. Put simply, this exploration has the power to change the landscape of therapies for the future, and hugely impact the NMD community. There was a strong focus about Gene Therapy throughout the conference, drawing big crowds. On one occasion, there were so many attendees for a session, a separate room had to set-up for the overflow of interested parties! We learnt about new and emerging therapies, as well as practical considerations for the Duchenne muscular dystrophy (DMD) and spinal muscular atrophy (SMA) fields \u2013 the learnings from which will no doubt inform our future strategy at myTomorrows. As an organization which prides itself on keeping up to date with the latest tech and treatments, we relentlessly focus on how we can best adapt to ensure patients worldwide have access to the most up to date information on the entire treatment landscape. My time at the conference truly reinforced my belief in the importance and relevance of the myTomorrows mission.<\/p>\n<\/div>\n<\/div>\n

One of the elements which struck me most, was the sheer power, support and care the MDA gives the neuromuscular disease community. By facilitating and creating a space which brought together people from every side of the coin \u2013 from patient, to caregiver, to physician to pharma provider, the MDA created conditions which enabled a wider, deeper, and more diverse discussion about what is really needed to further neuromuscular development. It offered numerous opportunities to network and meet new people within a relaxed atmosphere. Their relentless passion and care matches that of myTomorrows and coming back from the conference I\u2019m even more fired up to help more patients than ever before discover pathways to treatment.<\/p>\n

We\u2019re keen to continue the wonderful conversations and connections we made at the MDA conference. To help make this happen, my Medical Community team and I are excited to announce we will soon launch a new webinar series, designed at supporting clinical researchers, treating physicians and principal investigators \u2013 so watch this space to get involved!<\/p>\n","protected":false},"excerpt":{"rendered":"

Read our blog about the Muscular Dystrophy Association\u2019s Clinical & Scientific Conference, which was unique opportunity to connect with the neuromuscular disease community and learn about treatments in development.<\/p>\n","protected":false},"author":11,"featured_media":4957,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"inline_featured_image":false,"footnotes":""},"categories":[49,102],"tags":[127,128,129],"class_list":["post-3404","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-healthcare-professionals","category-partnership","tag-duchenne-muscular-dystrophy","tag-mda-conference","tag-muscular-dystrophy-association"],"acf":[],"yoast_head":"\nmighties at the MDA Conference - myTomorrows<\/title>\n<meta name=\"robots\" content=\"noindex, follow\" \/>\n<meta property=\"og:locale\" content=\"ar_AR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"mighties at the MDA Conference\" \/>\n<meta property=\"og:description\" content=\"Read our blog about the Muscular Dystrophy Association\u2019s Clinical & Scientific Conference, which was unique opportunity to connect with the neuromuscular disease community and learn about treatments in development.\" \/>\n<meta property=\"og:url\" content=\"https:\/\/main-portal.develop-mytomorrows.com\/ar\/blog\/healthcare-professionals\/mighties-at-the-mda-conference\/\" \/>\n<meta property=\"og:site_name\" content=\"myTomorrows\" \/>\n<meta property=\"article:published_time\" content=\"2023-03-24T14:06:09+00:00\" \/>\n<meta property=\"article:modified_time\" content=\"2024-02-27T13:25:28+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/main-portal.develop-mytomorrows.com\/wp-content\/uploads\/2023\/03\/IMG_368643.jpg\" \/>\n\t<meta property=\"og:image:width\" content=\"1400\" \/>\n\t<meta property=\"og:image:height\" content=\"1025\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/jpeg\" \/>\n<meta name=\"author\" content=\"myTomorrows Team\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:label1\" content=\"\u0643\u064f\u062a\u0628 \u0628\u0648\u0627\u0633\u0637\u0629\" \/>\n\t<meta name=\"twitter:data1\" content=\"myTomorrows Team\" \/>\n\t<meta name=\"twitter:label2\" content=\"\u0648\u0642\u062a \u0627\u0644\u0642\u0631\u0627\u0621\u0629 \u0627\u0644\u0645\u064f\u0642\u062f\u0651\u0631\" \/>\n\t<meta name=\"twitter:data2\" content=\"4 \u062f\u0642\u0627\u0626\u0642\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"WebPage\",\"@id\":\"https:\/\/main-portal.develop-mytomorrows.com\/ar\/blog\/healthcare-professionals\/mighties-at-the-mda-conference\/\",\"url\":\"https:\/\/main-portal.develop-mytomorrows.com\/ar\/blog\/healthcare-professionals\/mighties-at-the-mda-conference\/\",\"name\":\"mighties at the MDA Conference - myTomorrows\",\"isPartOf\":{\"@id\":\"https:\/\/main-portal.develop-mytomorrows.com\/ar\/#website\"},\"primaryImageOfPage\":{\"@id\":\"https:\/\/main-portal.develop-mytomorrows.com\/ar\/blog\/healthcare-professionals\/mighties-at-the-mda-conference\/#primaryimage\"},\"image\":{\"@id\":\"https:\/\/main-portal.develop-mytomorrows.com\/ar\/blog\/healthcare-professionals\/mighties-at-the-mda-conference\/#primaryimage\"},\"thumbnailUrl\":\"https:\/\/main-portal.develop-mytomorrows.com\/wp-content\/uploads\/2023\/03\/IMG_368643.jpg\",\"datePublished\":\"2023-03-24T14:06:09+00:00\",\"dateModified\":\"2024-02-27T13:25:28+00:00\",\"author\":{\"@id\":\"https:\/\/main-portal.develop-mytomorrows.com\/ar\/#\/schema\/person\/41c113cd0050de2a6248b66a25f3d313\"},\"breadcrumb\":{\"@id\":\"https:\/\/main-portal.develop-mytomorrows.com\/ar\/blog\/healthcare-professionals\/mighties-at-the-mda-conference\/#breadcrumb\"},\"inLanguage\":\"ar\",\"potentialAction\":[{\"@type\":\"ReadAction\",\"target\":[\"https:\/\/main-portal.develop-mytomorrows.com\/ar\/blog\/healthcare-professionals\/mighties-at-the-mda-conference\/\"]}]},{\"@type\":\"ImageObject\",\"inLanguage\":\"ar\",\"@id\":\"https:\/\/main-portal.develop-mytomorrows.com\/ar\/blog\/healthcare-professionals\/mighties-at-the-mda-conference\/#primaryimage\",\"url\":\"https:\/\/main-portal.develop-mytomorrows.com\/wp-content\/uploads\/2023\/03\/IMG_368643.jpg\",\"contentUrl\":\"https:\/\/main-portal.develop-mytomorrows.com\/wp-content\/uploads\/2023\/03\/IMG_368643.jpg\",\"width\":1400,\"height\":1025},{\"@type\":\"BreadcrumbList\",\"@id\":\"https:\/\/main-portal.develop-mytomorrows.com\/ar\/blog\/healthcare-professionals\/mighties-at-the-mda-conference\/#breadcrumb\",\"itemListElement\":[{\"@type\":\"ListItem\",\"position\":1,\"name\":\"Home\",\"item\":\"https:\/\/main-portal.develop-mytomorrows.com\/ar\/home\/\"},{\"@type\":\"ListItem\",\"position\":2,\"name\":\"mighties at the MDA Conference\"}]},{\"@type\":\"WebSite\",\"@id\":\"https:\/\/main-portal.develop-mytomorrows.com\/ar\/#website\",\"url\":\"https:\/\/main-portal.develop-mytomorrows.com\/ar\/\",\"name\":\"myTomorrows\",\"description\":\"Helping patients discover and access treatments\",\"potentialAction\":[{\"@type\":\"SearchAction\",\"target\":{\"@type\":\"EntryPoint\",\"urlTemplate\":\"https:\/\/main-portal.develop-mytomorrows.com\/ar\/?s={search_term_string}\"},\"query-input\":{\"@type\":\"PropertyValueSpecification\",\"valueRequired\":true,\"valueName\":\"search_term_string\"}}],\"inLanguage\":\"ar\"},{\"@type\":\"Person\",\"@id\":\"https:\/\/main-portal.develop-mytomorrows.com\/ar\/#\/schema\/person\/41c113cd0050de2a6248b66a25f3d313\",\"name\":\"myTomorrows Team\",\"image\":{\"@type\":\"ImageObject\",\"inLanguage\":\"ar\",\"@id\":\"https:\/\/main-portal.develop-mytomorrows.com\/ar\/#\/schema\/person\/image\/\",\"url\":\"https:\/\/secure.gravatar.com\/avatar\/0bf0b2e36f36bbb195b2bb3735c1d7840b9f4e9bf56bee09bde37db6229842cd?s=96&d=blank&r=g\",\"contentUrl\":\"https:\/\/secure.gravatar.com\/avatar\/0bf0b2e36f36bbb195b2bb3735c1d7840b9f4e9bf56bee09bde37db6229842cd?s=96&d=blank&r=g\",\"caption\":\"myTomorrows Team\"},\"url\":\"https:\/\/main-portal.develop-mytomorrows.com\/ar\/blog\/author\/mytomorrows-team\/\"}]}<\/script>\n<!-- \/ Yoast SEO Premium plugin. -->","yoast_head_json":{"title":"mighties at the MDA Conference - myTomorrows","robots":{"index":"noindex","follow":"follow"},"og_locale":"ar_AR","og_type":"article","og_title":"mighties at the MDA Conference","og_description":"Read our blog about the Muscular Dystrophy Association\u2019s Clinical & Scientific Conference, which was unique opportunity to connect with the neuromuscular disease community and learn about treatments in development.","og_url":"https:\/\/main-portal.develop-mytomorrows.com\/ar\/blog\/healthcare-professionals\/mighties-at-the-mda-conference\/","og_site_name":"myTomorrows","article_published_time":"2023-03-24T14:06:09+00:00","article_modified_time":"2024-02-27T13:25:28+00:00","og_image":[{"width":1400,"height":1025,"url":"https:\/\/main-portal.develop-mytomorrows.com\/wp-content\/uploads\/2023\/03\/IMG_368643.jpg","type":"image\/jpeg"}],"author":"myTomorrows Team","twitter_card":"summary_large_image","twitter_misc":{"\u0643\u064f\u062a\u0628 \u0628\u0648\u0627\u0633\u0637\u0629":"myTomorrows Team","\u0648\u0642\u062a \u0627\u0644\u0642\u0631\u0627\u0621\u0629 \u0627\u0644\u0645\u064f\u0642\u062f\u0651\u0631":"4 \u062f\u0642\u0627\u0626\u0642"},"schema":{"@context":"https:\/\/schema.org","@graph":[{"@type":"WebPage","@id":"https:\/\/main-portal.develop-mytomorrows.com\/ar\/blog\/healthcare-professionals\/mighties-at-the-mda-conference\/","url":"https:\/\/main-portal.develop-mytomorrows.com\/ar\/blog\/healthcare-professionals\/mighties-at-the-mda-conference\/","name":"mighties at the MDA Conference - myTomorrows","isPartOf":{"@id":"https:\/\/main-portal.develop-mytomorrows.com\/ar\/#website"},"primaryImageOfPage":{"@id":"https:\/\/main-portal.develop-mytomorrows.com\/ar\/blog\/healthcare-professionals\/mighties-at-the-mda-conference\/#primaryimage"},"image":{"@id":"https:\/\/main-portal.develop-mytomorrows.com\/ar\/blog\/healthcare-professionals\/mighties-at-the-mda-conference\/#primaryimage"},"thumbnailUrl":"https:\/\/main-portal.develop-mytomorrows.com\/wp-content\/uploads\/2023\/03\/IMG_368643.jpg","datePublished":"2023-03-24T14:06:09+00:00","dateModified":"2024-02-27T13:25:28+00:00","author":{"@id":"https:\/\/main-portal.develop-mytomorrows.com\/ar\/#\/schema\/person\/41c113cd0050de2a6248b66a25f3d313"},"breadcrumb":{"@id":"https:\/\/main-portal.develop-mytomorrows.com\/ar\/blog\/healthcare-professionals\/mighties-at-the-mda-conference\/#breadcrumb"},"inLanguage":"ar","potentialAction":[{"@type":"ReadAction","target":["https:\/\/main-portal.develop-mytomorrows.com\/ar\/blog\/healthcare-professionals\/mighties-at-the-mda-conference\/"]}]},{"@type":"ImageObject","inLanguage":"ar","@id":"https:\/\/main-portal.develop-mytomorrows.com\/ar\/blog\/healthcare-professionals\/mighties-at-the-mda-conference\/#primaryimage","url":"https:\/\/main-portal.develop-mytomorrows.com\/wp-content\/uploads\/2023\/03\/IMG_368643.jpg","contentUrl":"https:\/\/main-portal.develop-mytomorrows.com\/wp-content\/uploads\/2023\/03\/IMG_368643.jpg","width":1400,"height":1025},{"@type":"BreadcrumbList","@id":"https:\/\/main-portal.develop-mytomorrows.com\/ar\/blog\/healthcare-professionals\/mighties-at-the-mda-conference\/#breadcrumb","itemListElement":[{"@type":"ListItem","position":1,"name":"Home","item":"https:\/\/main-portal.develop-mytomorrows.com\/ar\/home\/"},{"@type":"ListItem","position":2,"name":"mighties at the MDA Conference"}]},{"@type":"WebSite","@id":"https:\/\/main-portal.develop-mytomorrows.com\/ar\/#website","url":"https:\/\/main-portal.develop-mytomorrows.com\/ar\/","name":"myTomorrows","description":"Helping patients discover and access treatments","potentialAction":[{"@type":"SearchAction","target":{"@type":"EntryPoint","urlTemplate":"https:\/\/main-portal.develop-mytomorrows.com\/ar\/?s={search_term_string}"},"query-input":{"@type":"PropertyValueSpecification","valueRequired":true,"valueName":"search_term_string"}}],"inLanguage":"ar"},{"@type":"Person","@id":"https:\/\/main-portal.develop-mytomorrows.com\/ar\/#\/schema\/person\/41c113cd0050de2a6248b66a25f3d313","name":"myTomorrows Team","image":{"@type":"ImageObject","inLanguage":"ar","@id":"https:\/\/main-portal.develop-mytomorrows.com\/ar\/#\/schema\/person\/image\/","url":"https:\/\/secure.gravatar.com\/avatar\/0bf0b2e36f36bbb195b2bb3735c1d7840b9f4e9bf56bee09bde37db6229842cd?s=96&d=blank&r=g","contentUrl":"https:\/\/secure.gravatar.com\/avatar\/0bf0b2e36f36bbb195b2bb3735c1d7840b9f4e9bf56bee09bde37db6229842cd?s=96&d=blank&r=g","caption":"myTomorrows Team"},"url":"https:\/\/main-portal.develop-mytomorrows.com\/ar\/blog\/author\/mytomorrows-team\/"}]}},"_links":{"self":[{"href":"https:\/\/main-portal.develop-mytomorrows.com\/ar\/wp-json\/wp\/v2\/posts\/3404","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/main-portal.develop-mytomorrows.com\/ar\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/main-portal.develop-mytomorrows.com\/ar\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/main-portal.develop-mytomorrows.com\/ar\/wp-json\/wp\/v2\/users\/11"}],"replies":[{"embeddable":true,"href":"https:\/\/main-portal.develop-mytomorrows.com\/ar\/wp-json\/wp\/v2\/comments?post=3404"}],"version-history":[{"count":7,"href":"https:\/\/main-portal.develop-mytomorrows.com\/ar\/wp-json\/wp\/v2\/posts\/3404\/revisions"}],"predecessor-version":[{"id":5940,"href":"https:\/\/main-portal.develop-mytomorrows.com\/ar\/wp-json\/wp\/v2\/posts\/3404\/revisions\/5940"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/main-portal.develop-mytomorrows.com\/ar\/wp-json\/wp\/v2\/media\/4957"}],"wp:attachment":[{"href":"https:\/\/main-portal.develop-mytomorrows.com\/ar\/wp-json\/wp\/v2\/media?parent=3404"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/main-portal.develop-mytomorrows.com\/ar\/wp-json\/wp\/v2\/categories?post=3404"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/main-portal.develop-mytomorrows.com\/ar\/wp-json\/wp\/v2\/tags?post=3404"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}