{"id":3126,"date":"2023-07-03T06:00:00","date_gmt":"2023-07-03T06:00:00","guid":{"rendered":"http:\/\/wordpress.mytomorrows.com\/?p=3126"},"modified":"2024-02-27T13:25:28","modified_gmt":"2024-02-27T13:25:28","slug":"brainstrust-providing-personalised-support-for-patients-and-caregivers","status":"publish","type":"post","link":"https:\/\/main-portal.develop-mytomorrows.com\/ar\/blog\/patients\/brainstrust-providing-personalised-support-for-patients-and-caregivers\/","title":{"rendered":"brainstrust: Providing Personalised Support"},"content":{"rendered":"

brainstrust<\/i><\/a>\u00a0is an organisation dedicated to supporting patients and caregivers affected by brain tumours.\u00a0brainstrust<\/i>\u00a0provides a personal touch and deep understanding to help thousands of individuals facing, and living with, brain cancer.<\/p>\n

To help us understand more, we spoke to Helen Bulbeck, co-founder of\u00a0brainstrust<\/i>. Having personally experienced cancer both as a patient and caregiver, her firsthand understanding of the challenges faced by patients, caregivers, and healthcare professionals allows her to empathise deeply and provide valued support to others.<\/p>\n

In this blog, we explore who\u00a0brainstrust<\/i> is, delve into the organisation\u2019s goals, and understand how it works to support both patients and caregivers.<\/p>\n

The goal of<\/b>\u00a0brainstrust<\/i><\/b><\/h3>\n

brainstrust<\/i>\u00a0aims to ensure that anyone living with a brain tumour can have their best possible day, even during end-of-life care. By focusing on maintaining a sense of personhood rather than just being a patient, the team works to enable individuals to be more resilient, to face challenges with confidence and to empower people to live fulfilling lives.<\/p>\n

However,\u00a0brainstrust\u2019s<\/i>\u00a0support equally extends to caregivers, who Helen explains, it\u2019s important to recognise have distinctly different needs and concerns. Caregivers often seek solutions and clinical trial options, while patients diagnosed with life-limiting brain tumours strive to make the most of their remaining time. For both groups, they provide tailored resources and coaching, helping to address challenges.<\/p>\n

Understanding the brain tumour community<\/b><\/h3>\n

Having supported patients and caregivers for 18 years, both Helen and\u00a0brainstrust<\/i>\u00a0understand the key challenges and motivations within the brain tumour community. Whilst individuals consistently want access to specialists and comprehensive care within their local communities, they\u2019re also looking for support on a much deeper more personal level.<\/p>\n

Patients want to have conversations which are centered around wellness maintenance, rather than solely being focused on treatment. They want to have honest discussions that move beyond medical matters, and instead address their personal aspirations and goals.<\/p>\n

In order to support the wider community, via its website,\u00a0brainstrust<\/i>\u00a0offers a\u00a0variety of resources<\/a>\u00a0and services to cater to the diverse needs of the community it interacts with, including practical hands-on guides for people and caregivers living with a brain tumour. It conducts online programs, coaching workshops, and health, social and wellbeing events which often include expert speakers from the brain tumour community. All of its activities and resources aim to bring people closer together, empowering individuals with a shared sense of understanding, compassion and experience.<\/p>\n

Building connections and confidence<\/b><\/h3>\n

brainstrust<\/i>\u00a0develops agency for those living with all brain tumours, supporting them to become active participants in their own healthcare. myTomorrows too shares this goal. We want to help amplify the support\u00a0brainstrust<\/i>\u00a0gives, and support patients and caregivers by helping them to access and discover treatment options. Recently, the myTomorrows team has been partnering with\u00a0brainstrust<\/i>\u00a0to hold patient webinar share groups, highlighting how our patient navigator team can support individuals in their treatment discovery journey.<\/p>\n

Chatting with Helen, it\u2019s clear just how remarkable an organisation\u00a0brainstrust<\/i>\u00a0is and the impact the personalised support it provides has. With its deep understanding and personal touch,\u00a0brainstrust<\/i>\u00a0improves the quality of life for individuals facing brain cancer. Through tailored resources\u00a0brainstrust<\/i>\u00a0empowers patients and caregivers to make informed decisions and face their challenges with resilience. By prioritising personhood over patienthood, they offer a holistic supportive approach.<\/p>\n

myTomorrows is proud to support\u00a0brainstrust\u2019s<\/i>\u00a0mission and be working alongside the charity.<\/p>\n

If you or someone you are caring for is living with a brain tumour, you can email the brainstrust team on<\/i>\u00a0hello@brainstrust.org.uk<\/i><\/a>. You can also book a call with one of the myTomorrows patient navigators by clicking<\/i>\u00a0here<\/i><\/a>.<\/i><\/p>\n","protected":false},"excerpt":{"rendered":"

brainstrust is an organisation dedicated to supporting patients and caregivers affected by brain tumours. myTomorrows is proud to support brainstrust\u2019s mission and be working alongside the charity.<\/p>\n","protected":false},"author":11,"featured_media":3224,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"inline_featured_image":false,"footnotes":""},"categories":[48,102],"tags":[114,115,116],"class_list":["post-3126","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-patients","category-partnership","tag-patient-advocacy-groups","tag-support","tag-brain-cancer"],"acf":[],"yoast_head":"\nbrainstrust: Providing Personalised Support - myTomorrows<\/title>\n<meta name=\"robots\" content=\"noindex, follow\" \/>\n<meta property=\"og:locale\" content=\"ar_AR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"brainstrust: Providing Personalised Support\" \/>\n<meta property=\"og:description\" content=\"brainstrust is an organisation dedicated to supporting patients and caregivers affected by brain tumours. myTomorrows is proud to support brainstrust\u2019s mission and be working alongside the charity.\" \/>\n<meta property=\"og:url\" content=\"https:\/\/main-portal.develop-mytomorrows.com\/ar\/blog\/patients\/brainstrust-providing-personalised-support-for-patients-and-caregivers\/\" \/>\n<meta property=\"og:site_name\" content=\"myTomorrows\" \/>\n<meta property=\"article:published_time\" content=\"2023-07-03T06:00:00+00:00\" \/>\n<meta property=\"article:modified_time\" content=\"2024-02-27T13:25:28+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/main-portal.develop-mytomorrows.com\/wp-content\/uploads\/2023\/07\/2022_Wear-grey-team-photo_2.jpg\" \/>\n\t<meta property=\"og:image:width\" content=\"1400\" \/>\n\t<meta property=\"og:image:height\" content=\"1050\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/jpeg\" \/>\n<meta name=\"author\" content=\"myTomorrows Team\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:label1\" content=\"\u0643\u064f\u062a\u0628 \u0628\u0648\u0627\u0633\u0637\u0629\" \/>\n\t<meta name=\"twitter:data1\" content=\"myTomorrows Team\" \/>\n\t<meta name=\"twitter:label2\" content=\"\u0648\u0642\u062a \u0627\u0644\u0642\u0631\u0627\u0621\u0629 \u0627\u0644\u0645\u064f\u0642\u062f\u0651\u0631\" \/>\n\t<meta name=\"twitter:data2\" content=\"3 \u062f\u0642\u0627\u0626\u0642\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"WebPage\",\"@id\":\"https:\/\/main-portal.develop-mytomorrows.com\/ar\/blog\/patients\/brainstrust-providing-personalised-support-for-patients-and-caregivers\/\",\"url\":\"https:\/\/main-portal.develop-mytomorrows.com\/ar\/blog\/patients\/brainstrust-providing-personalised-support-for-patients-and-caregivers\/\",\"name\":\"brainstrust: Providing Personalised Support - 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